North Yorker Lainie
Cohen is well aware of the power of determination. She's now looking
to spread that message with the launch of her new book, Crooked
Smile: One Family's Journey Toward Healing.
The book details the trials and tribulations she and her family
went through after her 17-year-old son Daniel sustained a severe
brain injury in a car accident.
"It's primarily a mother's account of the time after the
accident," she said. "I found that there were a lot of books out
there that gave the survivor's perspective on recovering from a
brain injury, but there wasn't much that discussed the family's side
of the story."
Because Daniel's brain injury left him with memory difficulties,
Crooked Smile also serves as a memoir through which Daniel can
witness the long road he has travelled throughout his recovery.
"Because he suffered post-traumatic amnesia for eight months
after the accident, Daniel had no idea how much his friends helped
and couldn't appreciate how far he had come," Cohen said. "So you
could say I wrote the story for him."
REMARKABLE RECOVERY
In the 11 years since the accident, Daniel has made a remarkable
recovery. He was wheelchair-bound, did not know his own name, did
not recognize his family and had lost the ability to speak. The
prognosis for his future was grim, with doctors suggesting he may
never even be able to sit up properly in a wheelchair. Through hard
work and intensive therapy, however, he is now on his feet and
living an active life.
"He was an inpatient at the Bloorview MacMillan Centre for 11
months and was at Sunnybrook for another four and the support he got
there was fantastic," Cohen said.
Though he is still visibly disabled, he is working as a small
business analyst. Always a sports enthusiast, Daniel was even able
to return to the slopes, downhill skiing with his family this past
winter.
"It just goes to show that nobody else can tell you how far you
can and can't go," Cohen said. "Doctors can run all the tests in the
world, but they can't take into account motivation or
determination."
Daniel worked his way through art, music, cognitive and
occupational therapy as well as intensive physiotherapy and
psychotherapy. Family members and friends were often on hand to
offer what assistance and encouragement they could.
"His friends were unbelievable, attending a lot of his therapy
sessions with him," Cohen noted. "These were a bunch of kids 18 and
19 years old, used to going out and partying, and instead they
wanted to spend their time helping my son in a pool as he worked on
his recovery."
While Daniel's accomplishments have been remarkable, there
remains a great deal of negative stigma surrounding brain injuries.
Because they are quite often not visible impairments, people
suffering from brain injuries are often misunderstood when they
exhibit such common symptoms as aggression, cognition and memory
problems, and fatigue.
"Fortunately Daniel didn't exhibit aggression, but having worked
with the Brain Injury Association for some time now, I've seen a lot
of people who do," Cohen said. "Because people don't often know the
behavioural components of brain injuries, that can cause
difficulties."
Though Crooked Smile is already available at major bookstores, it
will officially be launched on May 20 at Manor House at York
University's Glendon Campus, 2275 Bayview Ave. at Lawrence Avenue.
The launch will take place from 7 to 9 p.m. Those looking to attend
are asked to notify Lainie Cohen by e-mailing her at
mail@lainiecohen.com
For details on the book or on Cohen's speaking engagements, visit
www.crookedsmile.org